Sarah's Story

Family Days

In 2001, Sarah’s husband, Tony, was diagnosed with an oligodendroglioma. Following treatment it sadly returned more aggressively. Tony has struggled with depression and lives with side effects from treatment, including tiredness and difficulties with speech.

Sarah said: “Despite everything, we remain positive and have as many holidays and fun times together as we can.”

That included the family attending their first Family Day for parents living with a brain tumour, run in partnership with The Brain Tumour Charity.

Sarah first heard about the Family Day at a support group: “I wasn’t sure what to expect from the day, but it was very relaxed and you could take part in as much or as a little as you liked. It was great to spend time with people in similar situations and I met some lovely people. I didn’t expect to build a friendship from it, but I keep in touch with one family that we met on the day, which is really special."

“Our daughter was apprehensive about going and thought it would be ‘all medical’, but she had a great time and said she would like to go to more Family Days. We were able to take part in lots of activities on the day, including canoeing, archery, rugby and building a campfire."

“If a family is thinking about attending and is unsure about whether to go or not, I would highly recommend it. Everyone is very supportive and you can talk about your situation if you want to, but there isn’t any pressure. The activities are brilliant and we all had a great time. We made some great memories.”

Find out more about our Family Days.


©The Lewis Moody Foundation 2019


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