"The side effects of chemotherapy and radiotherapy treatment are brutal and the long-term effects can often have a severe impact on quality of life."
That’s why The Foundation is proud to be funding PNET5, a pioneering clinical trial which aims to tailor treatments for children improving quality of life while maintaining positive survival effects. Many children with brain tumours will have to live the rest of their lives with the life limiting side effects from their aggressive chemotherapy or radiotherapy treatment, including loss of balance, blindness or severe problems with hearing.
£2,000 can cover the cost for a child with a medulloblastoma brain tumour to have a biomarker test to see how aggressive their treatment will need to be. If they have a lower risk tumour they will be treated with a reduced dose of chemotherapy and radiotherapy, which will have less impact on their overall quality of life.
This trial could have a life changing impact on the lives of many children.
The first patient from the UK to join the SIOP PNET 5 trial in 2019 was four-year-old Alex Hobbs from St Albans. His mum Anthea said;
"The side effects of chemotherapy and radiotherapy treatment are brutal and the long-term effects can often have a severe impact on quality of life.
That is why we agreed for Alex to take part in this trial; any research that can help us get closer to a cure, whilst reducing the long-term effects, has got to be worth it for Alex and for future generations."
The Lewis Moody Foundation relies 100% on voluntary donations. By raising money for The Foundation, you can help us support families like Alex’s to improve the devastating effects that brain tumours and current treatment regimes can have.
Together we can tackle brain tumours. Thank you.